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This portal offers local information, advice, and national support for individuals with a life-limiting diagnosis (cancer and non-cancer), their families, friends and professionals too.
If you have any worries regarding your condition and the impact this is having on you or your loved ones, this portal aims to support you with links to websites/professionals who can guide you on this journey.
If you would like to be referred to the palliative care team, please speak to your GP practice or consultant/nurse who will be able to advise you further re this process or you can contact the services yourself directly and make a referral.
National support and advice
- Cancer Research UK
- Hospice UK working for those experiencing dying, death and bereavement – planning ahead tool
- Macmillan Palliative and End of Life Care
- NHS – End of Life Care
- ReSPECT person-centred decision-making in emergency situations and at the end of life
- Together for Short Lives: Children’s Charities
Where to go for help locally
In North East Lincolnshire, support with palliative and end of life care needs can be accessed:
- Care Plus Group – Specialist Palliative Care
- Community Nursing teams
- GP Practice
- NLAG end of life care
- Palliative Home Care (Haven Team)
- St Andrew’s Hospice
Support for carers
Specialist support is available from:
Work, money, legal and benefits
- Age UK – NE Lincs practical support and help for families with welfare benefits
- Bereavement support payment
- Care Plus Group – Specialist Palliative Care 01472 250623 Welfare Benefits Team
- Centre 4 free local advice
- ConnectNEL
- Citizens Advice North East Lincolnshire free advice service
- GOV.UK – benefits online benefits advice
- Macmillan.org.uk cancer information and support
- Money advice service provide free and impartial money advice
- NHS – Legal issues managing legal affairs
- North East Lincolnshire Council money worries information: financial and support
- Power of attorney make, register or end a lasting power of attorney
Support with daily living
- The single point of access (SPA) 01472 256256 is a local service, a team of health and social care professionals can offer advice, information and access to support for you or someone that you care for. The service can be contacted 24 hours a day, 7 days a week
- CARELINK 01472 312312 offers electronic solutions to support you or someone you care for in the home
- Compassion in Dying making decisions and planning your care
- ConnectNEL 01472 403403 a dedicated 24/7 phone line and an extensive database of services
Bereavement support
Support is available for adults and children:
If you have any queries, complaints, or compliments around the end of life services or pathways in North East Lincolnshire please let us know by emailing hnyicb-nel.askus@nhs.net or telephone 0300 3000 500.
Printable downloads
Supported Journey – printable download (PDF) 106KB
Financial and wellbeing support – printable download (PDF) 194 KB
Electronic Palliative Care Co-ordination System – printable download (PDF) 171 KB
Recommended Summary Plan for Emergency Care and Treatment- printable download (PDF) 96 KB
Useful websites – suggested sites to explore
- Advance decision (living will) – NHS (www.nhs.uk)
- Age UK – what to do when someone dies
- Alzheimer’s Society: What is an advance statement?
- Asthma + Lung UK (blf.org.uk) – advice and support, as the nation’s lung charity
- British Heart Foundation – information about heart or circulatory conditions, tests or treatments
- Carers UK – making life better for carers
- Care Quality Commission independent regulator of all health and social care services in England
- Children and adults safeguarding
- Citizens Advice – death and wills information
- GOV.UK – when someone dies
- Hospice UK – including Dying matters information
- Life story network – promotes the value of using life stories to empower and improve the wellbeing of often overlooked communities or people
- Lindsey Lodge Hospice
- Macmillan Cancer support – get support when you need it
- Marie Curie – care and support through terminal illness
- Mind – suicidal feelings
- Motor Neurone Disease Association (MND) – information on MND and Kennedy’s disease, and what to do next if you have recently been diagnosed with either condition
- Multiple sclerosis (MS) – information and advice to support you
- NHS Humber and North Yorkshire Integrated Care Board (ICB) – The Humber and North Yorkshire Health and Care Partnership is a collaboration of health and care organisations
- Parkinsons – information and support
- Red Cross – how to close social media accounts of deceased loved ones
- RESUS – information including different languages, and the ResPECT Patient Guide
- Tell us once – a service that lets you report a death to most government organisations in one go
- Together for shortlives